Civic & Social Organization - Beijing, Beijing, China
北京病痛挑战公益基金会(简称病痛挑战基金会,英文缩写ICF)是北京市第一家关注罕见病领域的公益基金会,致力于通过社群服务、行业发展、社会倡导,共同解决罕见病群体面临的迫切问题,为面临病痛挑战的人士,建立平等、受尊重的社会环境。本基金会缘起于"冰桶挑战",于2016年2月29日国际罕见病日正式宣告成立。The Beijing Illness Challenge Foundation (ICF) is the very first public welfare foundation in Beijing focusing on the field of rare diseases. ICF is devoted to solving urgent matters faced by the rare disease community through community services, nonprofit sector development, social advocacy, and eventually creating an equal and respectful environment for the community challenged by illness in the society. The Foundation is inspired by "the Ice Bucket Challenge" and founded on 29th February 2016, the International Rare Disease Day.ICF致力于支持罕见病病友的医疗康复,培育积极行动的罕见病自组织,搭建多方参与的平台,打造公众链接感强的品牌项目,推进罕见病问题的制度保障,解决罕见病群体在医疗康复、教育就业、社会融入等方面的迫切问题,使每一个生命个体无论身患何种疾病、面临何种不便,都能受到尊重与支持,共同实现公平正义、多元共融的美好社会。ICF is committed to support patient organizations that focus on medical treatment and rehabilitation as well as promoting policy and rights advocacy activities for rare diseases. It aims to establish platforms which involve participation from multiple actors and agencies, create signature projects that the public feel strong connections with, promote for a better social welfare coverage for rare diseases, and solve urgent matters faced by the rare disease community, including medical treatment and rehabilitation, education, employment, and social inclusion. The ultimate goal is to create a supportive and respectful environment for every person no matter what disease or challenge they have to suffer or face. Hence creating a fair, righteous, and inclusive society.愿景:为面临病痛挑战的人士,建立平等、受尊重的社会环境。Vision: Create an equal and respectful social environment for the community challenged by illness.
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