Usher Syndrome Coalition

Social Services - Maynard, MA, US

Usher Syndrome Coalition Details

The Usher Syndrome Coalition's mission is to raise awareness and accelerate research for the most common genetic cause of combined deafness and blindness, while providing information and support to individuals and families affected by Usher syndrome.The Coalition counts a number of leading institutions and researchers among its members. Member institutions bring their expertise and commitment to the work of the Coalition, collaborating with partners and researchers from some of the finest international organizations in the world. In short, the Usher Syndrome Coalition strives to be the most comprehensive resource for the Usher syndrome community.

Usher Syndrome Coalition logo, Usher Syndrome Coalition contact details
Employees: 5 - 9
HQ: 978-637-2625
Location: Maynard, MA, US
Revenue: 2.5 - 5 Million
USH Trust an International Usher Syndrome Registry Annual Usher Syndrome Family Conferences Unraveling USH an Usher Syndrome Genetic Testing Initiative USH Blue Book (formerly Family Network) International Symposiums on Usher Syndrome USH Yellow Book Social Services Individual and Family Services Individual & Family Services
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