- Sandpoint, Idaho, United States
24 hours for Hank is a non-profit 501c set up by friends and family of Hank Sturgis in 2008. Our hope is to find a cure for Hank and all children that suffer from Cystinosis. Because Cystinosis is considered an "orphan disease" all research funds are generated by the private sector. We are proud to be in partnership with the Cystinosis Research Foundation. Thanks to their hard work funds have already been raised through private individuals and businesses to start research for better medication and hopefully a cure.Cystinosis is a rare metabolic disease that affects approximately 500 people in the United States (mostly children), and about 2,000 people worldwide.24 Hours for Hank is a non-profit, tax-exempt entity pursuant to Section 501(c)(3). Federal Tax ID #26-2856413. All net proceeds of the funds raised will go directly to The Cystinosis Research Foundation to support medical research.
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