AbraCCHS

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A AbraCCHS, Associação Brasileira das Famílias, Amigos e Pessoas com CCHS - Síndrome de Ondine, é uma entidade civil, sem fins lucrativos, registrada no Brasil, por familiares e pessoas com CCHS.\\Nossa missão é disseminar informações acerca da CCHS junto à comunidade médica e familiares, dar apoio aos familiares e pessoas com CCHS e fomentar à união das famílias e apoio à pesquisa científica da CCHS.

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