Alagille Syndrome Alliance
Non-Profit - Wilsonville, OR, US
Alagille Syndrome Alliance Employees
Alagille Syndrome Alliance Details
"Mobilizing resources, facilitating connections, promoting unity, and advocating for a cure to inspire, empower, and enrich the lives of people affected by Alagille Syndrome."The Alagille Syndrome Alliance is a 501(c)(3) public charity with a Medical Advisory Board, a quarterly newsletter and web site that reachs families worldwide. We provide a vital link between families and offer them the resources they need to help their children live longer and healthier lives.The ALGSA is the primary resource for people with ALGS, their families and friends who form a close-knit community to provide mutual support, share information, and connect to resources. As the source of current, accurate information on ALGS and its treatment, we provide financial support for research and are actively involved in encouraging our members to participate in research studies.
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