ALS ONE
Non-Profit - Whitman, MA, US
ALS ONE Employees
ALS ONE Details
Amyotrophic Lateral Sclerosis (ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. ALS was first found in 1839. There is still no treatment or cure and patients with ALS can expect to live, on average, between 2-5 years from the onset of symptoms. Every 90 minutes someone gets diagnosed with and someone passes away from this devastating disease. HOW ALS ONE IS PLANNING ON CHANGING HISTORYThe top leaders, researchers, doctors and caretakers in ALS within Massachusetts have joined forces to bring the strengths of their venerable institutions to an ambitious plan.ONE GOAL: Identify a treatment for ALS and enhance care resources for persons living with ALS.ONE TEAM:Dr. Robert Brown Jr., MD, DPhil UMass Medical CenterDr. Merit Cudkowicz, MD, MSc Massachusetts General Hospital (MGH)Dr. Steve Perrin, Ph.D. ALS Therapy Development InstituteDr. Nazem Atassi, MD Massachusetts General Hospital (MGH)Dr. James Berry, MD Massachusetts General Hospital (MGH)Ron Hoffman, Founder and Director Compassionate Care ALS (CCALS)ONE PATHTogether, this team has identified the strongest therapeutic opportunities in ALS, and has developed a plan with the goal of bringing a treatment or cure to patients by January 2020. ONE PLANThe ALS ONE scientific plan is milestone driven, and will require significant funding to advance. Our approach is to leverage the expertise from the research institutions involved in a true partnership, including the share of ideas and responsibilities to advance each of the strongest therapeutic opportunities identified forward. A percentage of funds raised will be directed to Compassionate Cares ALS (CCALS) and the ALS Clinics at Massachusetts General Hospital and UMass Medical Center to assist persons living with ALS with the many needs they will face until a treatment is available.ONE NEEDTo raise money to fund ALS ONE so that they can achieve their goal.
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