Chicago Rare Disease Foundation
Research - Chicago, Illinois, United States
Chicago Rare Disease Foundation Employees
Chicago Rare Disease Foundation Details
Our model of care drives patient based, treatment focussed research projects from disease characterization to treatment with greater efficiency. In guiding research and parental knowledge through the various stages of rare disease research we can impact the way rare conditions are managed.CRDF is dedicated to helping people with rare (orphan) diseases and assisting the professionals that serve them. We are also committed to the identification, treatment, and cure of rare diseases, rare disorders, and those who are undiagnosed through programs of education, advocacy, research, and service. CRDF also wants to bring a national awareness and recognition of the challenges faced by people living with rare diseases and the associated costs to society. Develop a culture of innovation that supports both the basic and translational research necessary to create diagnostic tests and therapies for all rare disorders. While also, having a regulatory environment that encourages development and timely approval of safe and effective diagnostics and treatments for patients with rare diseases.Every day, we are inspired by our patients to provide innovative treatments to eliminate rare diseases. CRDF has a personalized approach, which means we provide each patient with the kind of attention and consideration we would want for our own loved ones. At CRDF our patients always come first.
