CureARS
Fund-raising - Raritan, New Jersey, United States
CureARS Employees
CureARS Details
CureARS is a 501(c)(3) non-profit organization located in Raritan, NJ. It is our goal to fund research that could lead to potential treatment options. Research projects are carefully selected based on this goal with the objective to provide a longer and better quality of life for ARS patients worldwide. The long-term goal of CureARS is to fund projects with the potential for a cure (such as gene therapy).The mitochondrial ARS genes are considered ultra-rare and most families are sent home with little to no direction on what the future holds for their loved ones. By connecting families, we strive to create a communication network that will enable families to be better equipped to advocate for their loved ones. There are not many resources provided to these families and most medical providers do not understand these disorders. There are very few specialists who have experience with these conditions. Those affected are left with the burden of teaching the medical community about their conditions. By joining families, we can combine our resources and learn from each other. Many ARS family members struggle with finding their purpose and are confronted with no true path to helping their loved ones who are suffering from these debilitating conditions. It is our hope that these families can find their purpose in being part of the solution.
