Ehlers-Danlos Syndrome Research Foundation

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Ehlers-Danlos Syndrome Research Foundation Employees
Tim Yin

Research Coordinator

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Michael Gaspar

Director of Research

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Debra Kushner

Managing Director

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Alissa Mph

Co-Founder, Researcher

Contact Alissa Mph

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Ehlers-Danlos Syndrome Research Foundation Senior Management
Debra Kushner

Managing Director

Contact Debra Kushner

Alissa Mph

Co-Founder, Researcher

Contact Alissa Mph

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Ehlers-Danlos Syndrome Research Foundation Details

Welcome to the Ehlers-Danlos Syndrome Research Foundation! We are a 501(c)(3) organization working to ensure that Ehlers-Danlos Syndrome (EDS)/Hypermobility Spectrum Disorder (HSD) patients are diagnosed promptly and can access affordable and effective care across multiple organ systems and health institutions.Our work has three areas of focus: 1) Demonstrate the impact of underinvestment in EDS 2) Advance research on treatment modalities, efficacy, and delivery 3) Educate healthcare professionals about EDS, with emphasis on how to identify, refer, and manage patients

Ehlers-Danlos Syndrome Research Foundation logo, Ehlers-Danlos Syndrome Research Foundation contact details
Website: edsrf.org
Employees: 5 - 9
HQ: N/A
Location: N/A, N/A, us
Revenue: Not Available
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