Biotechnology - Leiden, South Holland, Netherlands
I started Entrepreneurship & Innovation for Leber's Congenital Amaurosis (E&ILCA) in January'16. E&ILCA is a non-profit enterprise focused on improving family life for those suffering from LCA.\ \E&ILCA's main focus are cutting-edge technologies, advancing translational sciences & global liaising for genetically caused blindness. To integrate patient-centric research with scientific expertise, E&ILCA leads in the proactive establishment of communication between global stakeholders. With the use of numerous social-media platforms, virtual conferences, local scientific events, national symposium and international conferences, E&ILCA raises public awareness & educates about the needs of rare disease patients. E&ILCA successfully created and implemented unconventional and innovative ways to engage general public.
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