Eurordis
Non-Profit - Elizabethtown, PA, US
Eurordis Employees
Concha Mayo
Trainer at the Leadership School & Project Manager at PARADIGM Project #PatientEngagement
Lara Chappell
Strategic Communications and Marketing Director, Head of Awareness, Public Engagement and Events
Eurordis Details
EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 900 rare disease patient organisations from more than 70 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe. By connecting patients, families and patient groups, as well as by bringing together all stakeholders and mobilising the rare disease community, EURORDIS strengthens the patient voice and shapes research, policies and patient services.Our vision:Better lives and cures for people living with a rare disease Our mission:EURORDIS-Rare Diseases Europe works across borders and diseases to improve the lives of people living with a rare disease
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