EveryLife Foundation for Rare Diseases

Public Safety - Washington, DC, US

EveryLife Foundation for Rare Diseases Employees
Jamie Sullivan

Director Of Public Policy

Contact Jamie Sullivan

Adrian Palau-Tejeda

Diversity and Inclusion Fellow

Contact Adrian Palau-Tejeda

Ted Brasfield

Senior Director Of Development

Contact Ted Brasfield

Swapna Kakani

RDLA State Advocacy Fellow

Contact Swapna Kakani

Katelyn Laws

Rare Disease Legislative Advocates (RDLA) Program Coordinator

Contact Katelyn Laws

Alyssa Terwall

Special Events Manager

Contact Alyssa Terwall

Carol Kennedy

Chief Development Officer

Contact Carol Kennedy

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EveryLife Foundation for Rare Diseases Senior Management
Megan Pinegar

Chief Operating Officer

Contact Megan Pinegar

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EveryLife Foundation for Rare Diseases Details

We are dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments and cures.

EveryLife Foundation for Rare Diseases logo, EveryLife Foundation for Rare Diseases contact details
Employees: 20 - 49
HQ: N/A
Location: Washington, DC, US
Revenue: 2.5 - 5 Million
Advocacy Patient Engagment Rare Diseases Public Policy
EveryLife Foundation for Rare Diseases Technologies
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