Hypersomnolence Australia
Health, Wellness & Fitness - Brisbane, Queensland, Australia
Hypersomnolence Australia Employees
Hypersomnolence Australia Details
Advocacy, Education and Raising Awareness of Idiopathic HypersomniaOur purpose:Our primary purpose is to support the medical community work towards a better understanding of Idiopathic Hypersomnia, effective treatment options, and identifying biomarkers that will lead to more appropriate diagnostic tools and ultimately a cure for Idiopathic Hypersomnia. We are committed to being a strong advocacy, raising awareness and educating others about Idiopathic Hypersomnia. Our goal is to not just change the process to diagnosis but also the level of care and services available to patients post diagnosis. Our Aim: Set up and maintain a registry of people diagnosed with Idiopathic Hypersomnia that will be used with permission for aiding research and educationHelp to improve the level of education with regards to Idiopathic Hypersomnia within the medical communityProvide support for clinical trials and research and to provide a link between researchers and people with Idiopathic HypersomniaIncrease public awareness and education of Idiopathic HypersomniaAdvocate for the interests of people with Idiopathic HypersomniaProvide support and information to patients and their family and friendsProvide information, referrals and advocate for better management of sleep and general health*Host and promote the annual International Idiopathic Hypersomnia Awareness Week
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