Nonprofit Organization Management - , ,
Levine Cardiac Kids is a group that supports children who are being treated for, or have recently been diagnosed with, Congenital Heart Defects (CHD) and their families. Our goal is to provide a forum in which members: * Support one another through the sharing of experiences. As parents who cope with many of the same issues and anxieties over our children's health, we share a special bond and offer each other the "parent perspective" that differs from that of the medical perspective. For the CHD children, support is provided primarily through the family structure, but also through building relationships with other CHD patients and gaining a deeper awareness of what it means to live with a CHD. * Educate ourselves on pertinent issues related to heart-health, diagnostic procedures, treatments, terminologies, financial/insurance considerations and coping strategies. * Spread awareness of congenital heart defects and the existence of our support group within the community. Additionally, we seek to develop relationships with medical professional and hospitals that provide comprehensive pediatric cardiac care, such as Levine Children's Hospital, to provide our families with a direct link to the access of medical support, facilities, and advocation of quality pediatric medical care.