Live RhysStrong Foundation

Nonprofit Organization Management - San Francisco, California, United States

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The Live RhysStrong Foundation was founded in memory of Rhys Anthony Santiago, who was diagnosed with Spinal Muscular Atrophy (SMA) when he was just 5 weeks old. In his 55 days Rhys inspired others to help in any way they can, and his inspiration continues to burn bright. The Live RhysStrong foundation took flight the same day Rhys grew his angel wings—August 26, 2013. Our goal is to increase visibility of Spinal Muscular Atrophy, help raise funds for research and help families affected by this physically, emotionally, and financially taxing disease. We tirelessly work towards the day when SMA does not rob babies of their futures. We are a 100% volunteer-organization currently entirely funded by donations.

Employees: 4
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Location: San Francisco, California, United States
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