MPN Research Foundation
Non-Profit - Chicago, IL, US
MPN Research Foundation Employees
Stephanie Fischer
Director of Patient and Biopharmaceutical Industry Engagement
MPN Research Foundation Senior Management
MPN Research Foundation Details
The MPN Research Foundation's vision is a world where a diagnosis of one of the blood cancers polycythemia vera, essential thrombocythemia and myelofibrosis are manageable, and patients do not worry about progression to more acute forms of blood cancer. The primary mission is to stimulate original research in pursuit of new treatments and eventually a cure for polycythemia vera, primary myelofibrosis and essential thrombocythemia. In addition, the MPN Foundation promotes collaboration in the scientific community to accelerate MPN research, and serves as a powerful patient advocacy group for MPN patients and their families.The MPN Research Foundation supports innovative efforts to advance scientific understanding of the causes and potential treatments for the MPNs - polycythemia vera, primary myelofibrosis and essential thrombocythemia. To date, the Foundation has funded more than 12 million dollars in MPN research projects. In 2017 we launched a registry for patients - www.mympn.org - to self-report their experiences with PV, ET and MF. We have prioritized funding new investigators and investing in research that is high risk / reward which promises a better understanding of what is causing MPN. Our programs are guided by patients who we interact with and who serve on our board, as well as our Scientific Adviser John Crispino (Northwestern), who along with our Scientific Advisory Board provides specific guidance on strategic issues related to supporting the clinical trial process; interaction with the FDA and other regulatory agencies; investment in infrastructure to support ongoing research (e.g., optimize patient registry, tissue banking, model development, etc.) and more as needed. A list of SAB members is found here: http://www.mpnresearchfoundation.org/Scientific-Advisory-Board
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