Muscle Help Foundation
Nonprofit Organization Management - Buntingford, England, United Kingdom
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Muscle Help Foundation Details
VISION - to offer hope, inspiration and empowerment to all children, young people and their families in the UK who are suffering from the muscle wasting disease Muscular Dystrophy and allied neuromuscular conditions.MISSION - The Muscle Help Foundation brings together children, young people and their families, creating communities through transformational events, networks and activities. Through Muscle Dreams and by bringing beneficiaries and families together, we aim to help fulfil their potential, giving them a sense of purpose and hope for the future.SUMMARY - we are a small specialist family charity delivering highly personalised experiences (called Muscle Dreams) in the UK that give joy, inspiration and hope, for children and young people afflicted by the muscle wasting disease, Muscular Dystrophy. The family unit benefits directly through social interaction with other beneficiary families and outcomes include new friendships, support networks, improved self-esteem and confidence.UNIQUE DELIVERABLE - we have a deep understanding and empathy towards both the children who receive 'Muscle Dreams', as well as the wider family unit who draw strength and inspiration from the personal involvement of Michael McGrath, the charity's CEO, himself a sufferer and now as a result of the progressive nature of his specific condition (LGMD2A), a permanent electric wheelchair user.ABOUT MUSCULAR DYSTROPHY (MD) - MD is the single biggest genetic killer of children in our world today. In the UK, more than 70,000 babies, children and adults are affected – sufferers are robbed of their mobility, independence and finally, for those with the most severe form, known as Duchenne Muscular Dystrophy (DMD), their lives. There is currently no known treatment to delay or reverse the progression of the disease.The Muscle Help FoundationRegistered Charity No. 1096716
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