Non-Profit - Brooklyn, NY, US
Moving Glioblastoma from terminal to treatable. Powered by patients. OurBrainBank (OBB) is the first non-profit created by, with, and for people living with Glioblastoma (GBM). GBM is an aggressive and rare brain cancer. The 5-year survival rate is 5%.OBB founder Jessica Morris (1963-2021) was diagnosed with GBM in 2016. Frustrated by the paucity of options, she brought together fellow patients, neuro-oncologists, and tech experts to form OBB.Our pilot study used a free app to help people manage GBM better by tracking symptoms and activities. It also gives hope, as data donated to qualified GBM researchers worldwide will fast-track new treatments.Patient-driven data is the new currency in medical research and apps the new empowerment tool for patients. It could potentially have the same impact as a blockbuster new drug.
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