Prader-Willi Syndrome Association of Victoria
Nonprofit Organization Management - Melbourne, Victoria, Australia
Prader-Willi Syndrome Association of Victoria Employees
Prader-Willi Syndrome Association of Victoria Details
The Prader-Willi Syndrome Association of Victoria Inc. (PWSA Victoria) is a volunteer-led ACNC registered Australian Charity, with many volunteers having lived experience. Our HistorySince 1979, the PWSA Victoria has been providing vital on the ground support to families, professionals, and community organisations in the southern states of Australia. Today, we know more about Prader-Willi Syndrome (PWS) than ever before. The purpose of the PWSA Victoria is to provide vital services to those living and supporting people, with PWS in the areas of education, support, advocacy, and awareness. It is our role to work closely with organisations around the world, whose vision and purpose align with ours, to ensure the entire PWS community is well supported, while researchers around the world work hard to find a cure and viable treatments.It is our vision to ensure that every member living with PWS receives optimal care and assistance from the beginning of life. We provide up to date and relevant information to help guide families through all stages of the PWS journey and help navigate the medical and education system and the National Disability Insurance Scheme (NDIS). VISION: A world where people with Prader-Willi Syndrome lead a full and inclusive lifeWe also assist the wider PWS community – educators, professional service providers, medical and allied health professionals, disability advocacy groups, employers, the research community, and the broader community in understanding PWS and provide information on how best to care for someone with PWS.We aim to continue to break down barriers and create a world where everyone with PWS has access to the right tools, to enable them to live a full and inclusive life.MISSION: Empowering those living with PWS through support, education, advocacy, and awareness.
Prader-Willi Syndrome Association of Victoria Technologies
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