Pyruvate Kinase Deficiency Foundation
Non-Profit - N/A, N/A, US
Pyruvate Kinase Deficiency Foundation Employees
Pyruvate Kinase Deficiency Foundation Details
The PK Deficiency Foundation is a national nonprofit organization whose mission is to enhance the quality of life for patients and their families by providing awareness, expanding education and promoting advocacy. Key Objectives include:Developing programs that meet the medical, financial, psychosocial and education concerns/needs of those affected by PK Deficiency. Offering educational and support materials through its website, provider database, newsletter, and brochures.Providing a national database of specialists knowledgeable in PK deficiency,Providing resource listing of physicians participating in clinical trial.Sponsoring education to assist medical professionals in establishing appropriate standardized diagnostic and treatment guidelines.Sponsoring national and regional meetings.Supporting research into the cause and management of PK Deficiency.Pyruvate Kinase Deficiency (PK Deficiency) is an inherited condition in which there is premature destruction of red blood cells, resulting in low levels of these cells which carry oxygen to the body's tissue.
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