Rare Advocacy Movement
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Rare Advocacy Movement Details
The Rare Advocacy Movement (RAM) is a global rare disease community-based network dedicated to protecting the interests of the real world rare disease community. RAM dedicated to establishing a unified rare disease advocacy ecosystem that is reflective of the already diverse real world landscape through the development of sustainable community enhancing programs, resources and opportunities, that have been dubbed RAM Collaborations. RAM is committed to transparency, the clarification of biases and misunderstandings and to establishing that the real world rare disease community is provided not only a seat at the table but a respected and valued voice as equal rare stakeholders to those that are industry-based. RAM's network of community-based experience experts are determined to be treated as equal stakeholders within the therapeutic development continuum and to ensuring that community-based insights are no longer misrepresented, miscommunicated, exploited nor filtered through misinformed lenses.To learn more about our network visit www.RareAdvocacyMovement.com. You are welcome to contact us and also follow us on social media @RareAdvocacy.
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