- Glasgow, Scotland, United Kingdom
The Scottish Spina Bifida Association (SSBA) is the only specialist charity in Scotland to provide a lifetime commitment of dedicated support services, training and projects for everyone affected by the conditions of spina bifida and hydrocephalus. The SSBA, which has been running since 1965, seeks to increase public awareness and understanding of individuals with spina bifida and / or hydrocephalus and allied conditions. It aims to support all those affected to identify their needs and to empower them to make informed choices and decisions and therefore allowing them to live the highest quality of life possible. From finding out that you are pregnant and your child has spina bifida, to 6 months intensive support at birth – supporting through the first operations within the first 48 hours of birth, to every stage in the childs life and transition into adulthood, the SSBA are there to provide the reassurance, advocacy, information and support at a time when it is needed the most. Throughout the year we provide Family Groups, our award winning SEA Change Befriending project for children, family conferences, carers weekends, bereavement support, health check clinics, social groups and provide a lo-call helpline from our Family Support Centre in Cumbernauld.