Non-Profit - Naperville, IL, US
Sick Cells' mission is to elevate the voices of the sickle cell disease (SCD) community and their stories of resilience. In highlighting the grave disparities this community faces, we hope to influence decision-makers and propel change.Sick Cells envisions that this narrative work will achieve the following:1. Ignite public interest making sickle cell a public health concern2. Humanize SCD, which is a relatively invisible disease that affects people of many races and ethnicities3. Inspire the general public, who do not typically recognize their day-to-day encounters with SCD, to advocate for SCD4. Influence policy makers, educators, employers, healthcare administrators and healthcare providers to act to improve treatment and care for the SCD population5. Drive research and drug development which will lead to better treatments6. Empower the sickle cell community, regardless of hemoglobin type, to share their stories and know that they are not aloneThrough these actions, we hope to improve the quality of life and care for people living with the most common genetic disorder by challenging current policy and shifting social norms.
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