Nonprofit Organization Management - Solon, Ohio, United States
A day we will never forget, June 1, 1995, our two dear children, Julie and Alex, received the crushing diagnosis of Fragile X Syndrome, a devastating genetic disease that causes cognitive delay, severe anxiety and social impairment. Our lives were changed forever… Feeling the need to reach out to other parents, my wife, Leslie, and I founded the Fragile X Alliance of Ohio, a family support group, in 1997. We devoted the early years after our children's diagnosis to doing fundraisers for FX medical research and leading Fragile X awareness campaigns.
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