The Steve Waugh Foundation is ‘somewhere to turn' for children and young adults with Rare Diseases.Often without diagnosis, without treatment, and therefore, without reason to hope, the Rare Disease patient is the orphan of the health system. We strive to change this.We take a holistic approach in supporting children and young adults (0-25yrs) with the rarest diseases. We work to improve their quality of life by providing support and opportunities to connect with others through:Individual Grants: funding for children and young adults (0-25yrs) such as specialised equipment and treatment therapiesRespite Camps: specially designed retreats to support families caring for a child or young person with a Rare Disease (SNUG)Raising Awareness: playing a lead role in sponsoring a coordinated approach to the promotion of World Rare Disease Day in Australia since 2009

Website: stevewaughfoundation.com.au

Employees: Not Available

HQ: N/A

Location: N/A, N/A, AU

Revenue: Not Available

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The Steve Waugh Foundation is a non-profit organization dedicated to supporting children and young adults with rare diseases. Founded by former Australian cricket captain Steve Waugh, the foundation aims to provide a "somewhere to turn" for those affected by rare diseases, who often lack diagnosis, treatment, and hope. The foundation takes a holistic approach in supporting children and young adults aged 0-25, providing individual grants for specialized equipment and treatment therapies, respite camps for families, and raising awareness through events such as World Rare Disease Day. The Steve Waugh Foundation has made a significant impact in the lives of many young people and their families, providing them with the support and resources they need to improve their quality of life. The foundation's commitment to raising awareness about rare diseases has also helped to promote a coordinated approach to addressing the challenges faced by those affected. Through its tireless efforts, the Steve Waugh Foundation is a beacon of hope for those who often feel forgotten, and a reminder that they are not alone in their journey.

The Steve Waugh Foundation helps children and young people with rare diseases. These diseases are often not well understood, and people with them may not have a diagnosis or treatment. This can be very isolating and make it hard for them to have hope. The foundation wants to change this by helping these young people in a number of ways. First, they provide money for things like special equipment or therapies that can help improve their quality of life. They also run camps for families who are caring for a child or young person with a rare disease. These camps give them a chance to relax and connect with others who understand what they're going through. Finally, the foundation works to raise awareness about rare diseases. They want to make sure that people know about these diseases and the challenges that people with them face. They do this by supporting events and activities that promote World Rare Disease Day in Australia. Overall, the Steve Waugh Foundation is a place where children and young people with rare diseases can find support and connection. They work to improve their quality of life and give them hope for the future.