Stichting Parkinson's on the move
Nonprofit Organization Management - The Hague, South Holland, Netherlands
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My wife Virginia and I, together with my sister and her husband, dreamt of starting a Foundation that could assist people having Parkinson's and who don't have the same opportunities in care available to them. I have had Parkinson's for 10 years, having first being diagnosed with it at the age of 39, a shock at first to anyone so young as this is a disease traditionally thought of for older people. \I have been lucky enough to live in The Netherlands where access to good care and medicine and wealth of knowledge, has assisted greatly to make my life and dealing with Parkinson's a little easier. \There are however many people around the world who must struggle daily with Parkinson's as they don't have the same treatments and knowledge available to them. Often the broader public, and some times even the clinician profession, doesn't have a true understanding of what it is really like to live with Parkinsons, for older but especially also younger patients. Outside of medicine and potential surgery available to a select few, it can be the smaller things together with better knowledge and understanding that can help greatly, both for the Parkinson's patient themselves and for the family and friends around them.\As a family we have all had to learn what it is like to deal with this disease. We have all learnt many things, faced many hardships and misunderstandings, but have also come together through these experiences and helped each other to grow in so many ways. \ \In starting this Foundation we hope to bring together my experiences personally with dealing with this disease, but also collectively, in the hope that others may benefits from our experiences and insights as a family, and that we may find new ways in which to help make life a little easier for others, by sharing our knowledge and finding new ways better and more practically assist others.
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