The Rare Village Foundation
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The Rare Village Foundation Details
Welcome to the RARE Village! We are a non-profit organization founded by rare disease moms, to support rare disease families in their journey to build treatments for rare and ultra-rare genetic diseases. We know from experience how overwhelming a childhood rare disease diagnosis can be, but you are never along in the journey to your best rare disease life. Our goal is to serve rare disease families as they work to fund rare disease research and treatments, and to share resources and insights into living our best lives as a rare disease family. It takes a village to raise a rare child - let us be a part of yours.
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