(YARR) Young Adult Representatives of Rare Disease Legislative Advocates

Public Policy - Washington, Washington, United States

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Bryeanna Spain

Representative and Advocate

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(YARR) Young Adult Representatives of Rare Disease Legislative Advocates Details

The Young Adult Representatives of Rare Disease Legislative Advocates (RDLA) are a group ranging from 16-30 years old in the rare disease community. Participants are located throughout the United States. We each have unique relationships with rare disease, from patient or caregiver to sibling or friend, but we are united in our desire for progress. We do not discriminate by race, gender, color, disability, religion, cognitive ability or political party. We advocate to bring affordable, safe and effective treatments to the rare disease community.If you are interested in becoming a Young Adult Representative but are not within the age range above, please reach out to learn more. We will work with you!

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