Gabrielle deFiebre's Contact Details

Gabrielle deFiebre's Company Details

SRNA | connect. care. cure ™

Philadelphia, PA, US • 5 - 9 Employees
Non-Profit

The Siegel Rare Neuroimmune Association (SRNA) is a not-for-profit international foundation dedicated to the support of children, adolescents, and adults with a spectrum of rare neuroimmune disorders including: Acute Disseminated Encephalomyelitis (ADEM), Acute Flaccid Myelitis (AFM), MOG Antibody Disease (MOGAD), Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON) and Transverse Myelitis (TM).Founded in 1994 by family members and persons with these diagnoses, The TMA was incorporated on November 25, 1996 in the state of Washington and we became a 501(c)(3) organization on December 9, 1996.Membership of SRNA includes individuals with these rare disorders, their family members and caregivers, and the medical professionals who treat individuals with these disorders. SRNA currently has approximately 14,000 members from more than 80 different countries and has a large number of support groups across the United States and around the world. There are no membership fees.Our goal is to advance a comprehensive network dedicated to the care of our members through the development of professionals specializing in these rare disorders, centers of excellence focused on these disorders around the world, and our international community support system. Additionally, we are focused on strategic research priorities with our Board of Directors and Scientific Council to further the understanding of the causes of ADEM, AFM, MOGAD, NMOSD, ON, and TM, and to develop new acute and regenerative therapies.