Manager, Volunteer Programs and Advocacy at Pulmonary Fibrosis Foundation - Chicago, IL, US
We imagine a world without pulmonary fibrosis.The Pulmonary Fibrosis Foundation is focused on our mission to act as the trusted resource for all who are affected by this disease. Our signature programs include:PFF Care Center NetworkPFF Patient RegistryPFF Patient Communication CenterPFF Ambassador ProgramAn international network of support groups and online communitiesThe PFF SummitComprehensive disease education materialsOur expert Medical Advisory Board and the biennial PFF Summit allow us to maintain an ongoing dialogue with physicians, researchers, industry representatives, and the patient community. This creates a collaborative environment that will help us achieve many of our goals.Our peer-reviewed research program supports projects that improve understanding of pulmonary fibrosis and will lead to successful therapies. We have developed significant relationships with industry partners and upheld our position as the honest broker to inform those affected by pulmonary fibrosis of important scientific breakthroughs.