past president - board of directors at National Fragile X Foundation - Tysons Corner, VA, US
The National Fragile X Foundation has been committed since the organization was formed in 1984 to help families, spread awareness, find improved treatments, and support research leading to an eventual cure for all Fragile X-associated Disorders. Mission The National Fragile X Foundation unites the Fragile X community to: - Enrich lives through educational and emotional support - Promote public and professional awareness - Advance research toward improved treatments and a cure for Fragile X.