Jennifer Ebrey's Contact Details

Jennifer Ebrey's Company Details

Multiple System Atrophy Trust

Lower Road, ENG, UK • 20 - 49 Employees
Non-Profit

The Multiple System Atrophy Trust is the UK's support and information service for people with multiple system atrophy (MSA), their families and carers. It also funds vital research to find the cause and ultimately cure for MSA.MSA is a rare degenerative neurological disease that affects adult men and women and leads to premature death. It is caused by shrinking or atrophy of nerve cells in several (or multiple) areas of the brain which results in problems with movement, balance and automatic functions of the body such as bladder and blood pressure control.Some people with MSA say that it feels like the disease is trapping them in their own bodies. There is no known cause of cure.About 3,000 people in the UK have MSA, that's around 5 in every 100,000.The Trust currently employs a small team of staff and specialist nurses who provide the following services across the UK:• Telephone and email advice service offering support and information for people with MSA carers, health and social care professionals• Guides and fact sheets on a variety of aspects of living with MSA• Regular magazine• Regional and online support groups• Comprehensive website• Education sessions for healthcare professionals• Latest MSA research updates• Contact scheme for people with MSA and carers• Campaigning and advocating on behalf of people affected by MSA• Advice on organising or becoming involved in a fundraising eventTo ensure our services are accessible to everyone, the Trust is committed to providing its services free of charge.The Multiple System Atrophy Trust is a charity funded entirely by voluntary donations from individuals, companies and charitable trusts.