National Tay-Sachs & Allied Diseases Association (NTSAD) is the nation's longest-standing rare disease advocacy organization, founded in 1957. NTSAD works toward ensuring that all families affected by Canavan, GM1, Sandhoff, and Tay-Sachs are diagnosed early, can participate in cutting-edge research, access effective treatment, to live full and healthy lives. Families are at the center of everything that we do.