Karen Kelley's Contact Details

Karen Kelley's Company Details

The Life Raft Group

Wayne, NJ, US • 20 - 49 Employees
Market Research

The Life Raft Group (LRG) has a simple focus: to cure a form of cancer — GIST (gastrointestinal stromal tumors) – and to help those living with it until then.Our mission is to ensure the survival of GIST patients through a comprehensive approach connecting individual patients' needs, the worldwide community of GIST advocates and the global health and research environment.• To achieve this, the LRG funds and manages uniquely coordinated research initiatives that always keep the needs of the GIST patient foremost. The LRG is the only GIST advocacy organization with a dedicated research initiative led by a team of world renowned scientists and clinicians in GIST.• The Life Raft Group provides support and education to patients and caregivers living with GIST on an individual basis by providing one-on-one counseling sessions, local in-person meetings, and a biennial meeting gathering the patient, pharmaceutical community and medical professionals together in a supportive and educational setting. The LRG also offers education to the GIST community through videos, webinars, Days of Learning, GIST specialist database, GIST-specific clinical trials database, newsletters, etc.• The LRG is an active presence in effecting change within the GIST community. Advocacy roles ranges from helping patients with treatment access issues on a one-on-one basis, creating regional groups in underserved areas, and reporting on trends in treatment and survival to the world.