Libby Roper's Colleagues at Spinal Muscular Atrophy UK
Libby Roper's Contact Details
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Spinal Muscular Atrophy UK
Libby Roper's Company Details
Established in 1985, Spinal Muscular Atrophy UK is a charity that supports and empowers anyone affected by Spinal Muscular Atrophy (SMA). We are advocates for better services, raise public awareness and fund research related initiatives.Our Vision - Everyone affected by SMA has access to the best care, support and drug treatments; research continues to bring breakthroughs that improve people's quality of life, and ultimately aims to find a cure.Our Mission - To provide accurate information and a wide range of support services, while working to improve access to the best care, services and drug treatments today and funding research projects that can change tomorrow.Our Guiding Principles - Spinal Muscular Atrophy (SMA) is a complex and rare neuromuscular condition that affects each individual and their family differently. We will always be respectful of each person's needs and choices. All face the challenge of disability and obtaining the right support, care and opportunities to enable them to live long and fulfilling lives; some face the distress of early bereavement.