Martha Negron
Programs Manager, Sangre Latina at Hemophilia Federation of America - Washington, DC, US
Martha Negron's Colleagues at Hemophilia Federation of America
Martha Negron's Contact Details
202-675-6984
Hemophilia Federation of America
Martha Negron's Company Details
Hemophilia Federation of America (HFA) is a non-profit 501(c)3 organization incorporated in 1994 to address the evolving needs of the bleeding disorders community. We serve as a consumer advocate for safe, affordable, & obtainable blood products and health coverage, as well as a better quality of life for all persons with bleeding disorders. HFA's ongoing consumer advocacy agenda includes product safety, as well as accessibility, affordability, & availability of the products the individuals of this community require.Based in Washington, DC, HFA consists of a national office, organization, and 30+ community-based organizations made up of numerous parents, children, siblings, grandparents and friends impacted by a bleeding disorder. Many non-affected individuals and organizations such as healthcare providers, sponsors, donors, & specialty pharmacies play a significant role in the community. HFA utilizes its collaborative federation to strengthen community support and awareness, develop effective local organizations, and implement valuable community-based programs. These programs include a wide range of adult outreach initiatives, as well as broad-based support for families with bleeding disorders/hemophilia. HFA represents the bleeding disorders community on Capitol Hill, with the FDA, Centers for Disease Control and Prevention, and other key agencies. HFA strives to educate the community and provide tools that give the community a voice at state & federal legislatures.