Naghza Khokhar's Contact Details

Naghza Khokhar's Company Details

Harry's Hydrocephalus Awareness Trust (Harry's HAT)

Yateley, England, United Kingdom • 5 Employees
Nonprofit Organization Management

The charity was founded in 2018, by Harry's family and friends in response the need they identified following Harry's diagnosis with Hydrocephalus (water on the brain).Harry was diagnosed with an Arachnoid Cyst when his Mother, Caroline, was 36-weeks pregnant. Soon after Harry was born it was confirmed that the Cyst had caused #Hydrocephalus and that to survive Harry would need a permanent shunt. The Shunt which drains the fluid from his brain was inserted when Harry was just eight weeks old. By the time Harry had reached his first birthday he had already endured four brain surgeries. He spent lots of time in hospital and had frequent blue light trips into A&E. The family found themselves isolated by Harry's condition and struggled to access the support and information they needed. In addition, they realised that despite the fact that Hydrocephalus is the most common reason for brain surgery in children and affects 1 in every 1000 babies born in the UK today, relatively little is known about the condition and the is little investment into the management of condition on a national scale.In response, the family founded Harry's HAT. It is the only UK charity to focus solely on Hydrocephalus and its impact. Its overall aim is to make life better for children with hydrocephalus and for those who love and care for them. The charity has four key aims:1. Fund research to improve the outcome for children with the condition2. Raise awareness of Paediatric Hydrocephalus3. Connect families affected by hydrocephalus in children4. Fund training so that front-line workers can learn more about the condition and its management.