Robyn Hodes's Contact Details

Robyn Hodes's Company Details

Aplastic Anemia & Myelodysplasia Association of Canada

King City, ON, CA • 5 - 9 Employees
Hospital/Clinic

Our mission is to provide a seamless support network for every Canadian patient, family member, friend, and concerned healthcare provider dealing with aplastic anemia (AA), myelodysplasia (MDS) and PNH. We provide patient support through diagnosis, treatment and remission stages of these diseases.AAMAC was founded by a concerned parent whose child had AA, and was federally incorporated and registered (nationally) as a not-for-profit charity in 1987. One of the first goals of this new non-profit was to advocate for the formation of a national bone marrow donor registry in Canada to assist in the identification of a life saving bone marrow match for the patients that we represent.Currently, we provide coast-to-coast support through:→ Telephone support → Nurses education program → Quarterly newsletter→ Conferences & seminars → Grants for medical research → Patient Support Meetings→ Educational material → Peer to peer support