Executive Director and Founder at BPAN WARRIORS R.A.C.E. - Boca Raton, Florida, United States
BPAN WARRIORS is a US based 501(c)(3) non-profit, singularly focused on bringing life-saving treatments to patients living with BPAN, a rare, devastating, life-limiting, neurodegenerative disease - which presently has no treatment and no cure. We are dedicated to transparency, accountability and global collaboration. Our newly launched BPAN R.A.C.E. (research and collaborative exchange), a network of scientists, researchers, patients and industry stakeholders, will help to streamline and accelerate the path to a treatment for BPAN.OUR MISSION"TO EXPEDITE RESEARCH THAT WILL ADVANCE THERAPEUTICS AND ACCELERATE A CURE FOR BPAN"