Senior Director of Patient, Program and Volunteer Services at The Marfan Foundation - Port Washington, NY, US
Senior Director of Support Services and Volunteer Development
Marfan syndrome is a life-threatening genetic disorder of the body's connective tissue. It affects the heart and blood vessels, the bones and the eyes. Knowing the signs is the key to early and accurate diagnosis and life-saving treatment.The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders. We work tirelessly to advance research, serve as a resource for families and healthcare providers, and raise public awareness. We will not rest until we have achieved victory.Learn more and get involved at Marfan.org.