Swamy J's Contact Details

Swamy J's Company Details

Organization for Rare Diseases India

Bengaluru, Karnataka, India • 2 Employees
Nonprofit Organization Management

ORDI aims to systematically address the unmet needs of the stakeholders of rare diseases in India through advocacy, engagement, open debates, research and policy changes at the state and national levels. Catalyze the rapid development/delivery of affordable diagnostics and treatments for rare diseases in India through innovative collaborations / partnership among stakeholders for the benefit of rare disease patient community.Why Do We Care?Significant lack of awareness among the lay public and even among doctors. The whole education and healthcare system is more geared to cater to common diseases such as infectious diseases, diabetes, cardio vascular disease and cancer. This lack of awareness has created a dearth of resources and clinical care for patients.Flagship events of the organization include: #Racefor7 #Rarediseaseday www.racefor7.com Organizational website: www.ordindia.org