Chloe's Fight Rare Disease Foundation
Nonprofit Organization Management - Hopkins, Minnesota, United States
Chloe's Fight Rare Disease Foundation Employees
Chloe's Fight Rare Disease Foundation Details
Chloe's Fight Rare Disease Foundation envisions a world where research gives every child a chance to fight, no matter how rare their disease; a world in which every childhood disease has a viable and effective treatment.Our MissionThe mission of Chloe's Fight Rare Disease Foundation is to support research that focuses on finding and implementing effective cures and treatments for rare childhood genetic diseases such as metachromatic leukodystrophy (MLD).Our ValuesAccess/Equity for affected populations: Many children suffer from diseases that have potential cures but are not receiving adequate funding for further research. We are driven to provide each child with the chance to fight by targeting rare disease research.Fiscal responsibility/efficiency for our donors: Chloe's Fight Rare Disease Foundation understands that our contributors make a choice to give to us, many times sacrificially. Contributions are a sacred trust. We are committed to using all funds intentionally and with the purpose of furthering our vision for a world where each rare disease has a treatment.Transparency for contributors and supporters: Chloe's Fight Rare Disease Foundation understands that without our faithful supporters we cannot accomplish our mission. We strive to honor each contribution by communicating clearly with donors where their dollars are going and how that money will further the vision to provide each child with a treatment option.Erica and Philip Barnes founded CFRDF in honor of their late daughter Chloe Sophia Barnes (July 12, 2008-November 19, 2010). In addition to promoting rare disease research, Erica is a speech-language pathologist in both the medical and educational setting. Philip is a business architect at U.S. Bank.
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