Nonprofit Organization Management - Sydney, New South Wales, Australia
Creating a connected community for patient centred self-care.Dragon Claw is a website using online technologies which aims to provide information, community and support for those coping with autoimmune diseases like Rheumatoid Disease, Lupus and Juvenile Arthritis. It is designed to minimise the stress and anxiety felt by many of those involved in these debilitating conditions.'Now everything has changed - everything. I can't open the shampoo, I have difficulty living my life and doing every day things. I'm in pain constantly. My job is to make other people's lives easier and now my own is becoming harder' Rheumatoid Arthritis (RA) is a systemic immune-mediated disease that can affect many parts of the body. Rheumatoid arthritis is evident for about 2% of the workforce and is more accurately described as rheumatoid disease. The disease affects not only joints but muscles and organs as well and can produce severe pain and fatigue. There are few twists to this quiet monster. Those in high stress work environments have a higher incidence, especially if there is a family background of the disease.Dragon Claw's focus is on wellness and not on the illness,encouraging self care and care coordination.Share your story - Tell your story so we can help connect you with other users with similiar stories.Track your health, diet and meds - You can track your everyday activities on Dragon Claw to see how you progress.Information just for you - No more sifting through the web to find the information that is meant for you.Share your knowledge - Tell others what helps you, what doesn't help you, or any information you find useful.Dragon Claw aims to make life easier for those dealing with these awful diseases, reduce isolation, improve mental health and family stability,increase workforce participation and reduce hospital presentations.Want to get our newsletter or be involved? Send a note to: info@dragonclaw.net
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