FOP Australia
Nonprofit Organization Management - , ,
FOP Australia Details
FOP Australia aims to improve the lives of individuals and families affected by the extremely rare genetic condition Fibrodysplasia Ossificans Progressiva (FOP) by:Raising awareness of FOPProviding a support network for families and individuals with FOPFurthering research towards treatment and a cureFOP is one of the rarest, most disabling genetic conditions known to medicine, causing bone to form in muscles (and other soft tissue) throughout the whole body leading to ongoing and permanent restriction of movement. It is a progressive disease and there is no cure. Malformed big toes are nearly always associated with FOP at birth – recognising this sign can prevent misdiagnosis and catastrophic complications from unnecessary investigations that can trigger bone formation.
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