Nonprofit Organization Management - Addison, Texas, United States
Out Mission: Improving the quality of life for all people affected by lupus through programs of research, education, support, and advocacy.Service Area: Dallas/Fort Worth, San Antonio, Austin, El Paso, Lubbock, Amarillo, Tyler/Longview, and surrounding areas.What Is Lupus: Lupus is an unpredictable and misunderstood disease in which the immune system is out of balance, causing damage to any organ system in the body. Symptoms of lupus come and go, change over time, and often imitate other illnesses, making lupus difficult to diagnose. Lupus is one of the world's cruelest, most unpredictable and devastating diseases.Programs and Services:- Support of nationwide research initiatives- Conduct outreach efforts to increase public understanding of lupus- Provide caring support, physician referrals, and community resources- Monthly support groups, teleconferences, webinars, annual conference- Provide the most accurate up-to-date lupus information- Welcome packet for the newly diagnosed lupus patient- Offer patient education programs by lupus experts- Monthly newsletter- Provide information on local clinical trials and research sitesBoard of Directors:Leon "Beau" Palmer, Board ChairMaggie Tarsinos, Board Vice ChairAshton Dougherty, TreasurerCarlos M. Llanes Jr., SecretaryDolores English, Immediate Past ChairDirectors:Angela JohnsonBrandi AgnewCarmethia SandersNatalie WaskelCarolyn Teschemacher, Honorary Board MemberStaff:Holly Motteram, President & CEOHolly@lupuslonestar.orgChristy Munson, Field Services Director/South Central Texas christy@lupuslonestar.orgAdrienne Kohlenberg, Patient Services/Marketing Manageradrienne@lupuslonestar.org