Healthcare Facility/Healthcare Services - West Linn, OR, US
We C.A.R.E.™ ... Compassion for families, increasing Awareness, influencing & funding Research, and promoting Education for metachromatic leukodystrophy, a very rare terminal genetic neuro-metabolic disease where over half the cases affect infants. Also very active in Rare Disease policy, advocacy group and patient empowerment, and global newborn screening.
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