Myhre Syndrome Foundation

Fund-raising - Richardson, Texas, United States

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Myhre Syndrome Foundation Details

Myhre Syndrome is a rare genetic disease first described by Dr. Selma A. Myhre, an American pediatrician, in 1981. There are less than 200 confirmed cases of Myhre syndrome worldwide and true numbers are unknown. We hear of new cases each year as awareness grows.Myhre Syndrome Foundation is a patient advocacy organization dedicated to providing hope and improving the lives of those impacted by Myhre syndrome. We foster collaboration among all relevant stakeholders to build a strong, global community in order to advance research, as well as support, educate and advocate for those impacted by Myhre syndrome. (MSF is a registered 501c(3) charity)

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Employees: 1
HQ: +1(202) 656-9473
Location: Richardson, Texas, United States
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