National Bone Marrow Transplant Link
Hospital/Clinic - Southfield, MI, US
National Bone Marrow Transplant Link Employees
National Bone Marrow Transplant Link Details
Established in 1992, the National Bone Marrow Transplant Link helps patients, caregivers, and families cope with the social and emotional challenges of bone marrow/stem cell transplant from diagnosis through survivorship by providing vital information and personalized support services. The nbmtLINK has five original publications tailored to the needs of individuals affected by BMT: Graft Versus Host Disease: Living with the After Effects of Bone Marrow/Stem Cell Transplant; Bone Marrow/Stem Cell Transplant Frequently Asked Questions; Caregivers' Guide for Bone Marrow/Stem Cell Transplant: Practical Perspectives; Resource Guide for Stem Cell Transplant; and Survivorship Guide for Bone Marrow/Stem Cell Transplant: Coping with Late Effects. Additionally, the nbmtLINK created an EMMY award-winning video, "The New Normal," which chronicles the transplant journeys of six BMT survivors and is now available on a DVD and on YouTube. Individuals can be matched with a trained peer support volunteer who can lend a sympathetic ear. On the organization's website, visitors can read all of our booklets, or watch webcasts on coping with chronic Graft vs. Host Disease (cGvHD). The nbmtLINK also hosts a cGvHD Telephone Education and Support Group in conjunction with staff from the National Institutes of Health. We also have a survivorship recognition program, "Celebrating Second Birthdays," which honors the survivor on his or her transplant anniversary. For more information or to find out how you can help, please call 1-800-546-5268 or visit www.nbmtlink.org.
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