NF2 BioSolutions UK & Europe
Non-Profit - N/A, N/A, GB
NF2 BioSolutions UK & Europe Employees
NF2 BioSolutions UK & Europe Details
NF2 BioSolutions UK & Europe is a UK charity and an arm of the global NF2 BioSolutions organisation. (Registered in England and Wales charity no. 1189618) We are the ONLY UK NF2 charity supporting and accelerating gene therapy and immunotherapy research for a CURE to NF2. Our vision is a world where those living with NF2 will have access to cutting-edge solutions to live full and productive lives, free from daily physical and emotional pain or suffering.NF2 is a rare genetic disorder that affects approximately 1/35,000 individuals globally which results in the growth of multiple tumours throughout the central and peripheral nervous systems, including schwannomas, meningiomas, and ependymomas.Tumours that grow on the hearing nerves, called vestibular schwannomas, affect almost all NF2 patients and result in hearing loss, severe balance problems, and facial paralysisNF2 patients also frequently experience peripheral neuropathy and vision problems, which along with the tumours, result in a very poor quality of lifeNF2 is a progressive disorder where symptoms worsen over time. NF2 BioSolutions raise funds and channel all that is donated to them to four labs in the US. Three of those labs are developing gene therapies that will address NF2 at its source, while one lab is developing a way to reprogram bacteria to practically eat tumors. All of these labs need funding to translate their science from research to clinical trials and then to active treatments, treatments that will revolutionize how the war against NF2 is fought.Due to rapid medical advances, gene therapy is now becoming a possibility for many medical conditions and genetic disorders. It is changing the world of genetic disorders and its potential is enormous.Our Mission is to increase awareness of NF2 and ultimately fundraise to advance gene therapy for treatment or a cure for NF2. We would love for you to get involved, there are many ways you can help, Keep the world talking about NF2!
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