Osteogenesis Imperfecta Federation Europe
Health, Wellness & Fitness - Oslo, Oslo, Norway
Osteogenesis Imperfecta Federation Europe Employees
Ralph Sakkers
Member Medical Advisory Board Osteogenesis Imperfecta Federation Europe (OIFE)
Osteogenesis Imperfecta Federation Europe Details
The Osteogenesis Imperfecta Federation Europe (OIFE) is an umbrella association. Its membership consists of national and sub-national organisations which, in one way or another, support people living with the rare diagnosis Osteogenesis Imperfecta (OI). The OIFE was established in 1993 by six founding OI societies as a non-profit organisation and is registered as a charity in the Netherlands.Our goals are to: * Represent our members on an international level and be the voice of people with OI and their families* Grow an international network between professionals, organizations, individuals and other stakeholders* Advocate for access to competent healthcare and social support* Encourage scientific research on OI* Empower our members by sharing information, knowledge and best practices* Support development of OI organizations and local support in more countries* Guide individuals towards information, healthcare and support
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